dialysís in Finland

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oompah18
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Re: dialysís in Finland

Post by oompah18 » Fri Jun 05, 2009 12:14 am

:evil: :evil: :evil:
Apparently he can only claim free taxi ride if he goes to hemodialysis permanently, but because he is only on it for 6 wks or so, then doing peri. dialysis at home, he cannot get it free. Who makes up these rules anyway? He needs hemo d. now to stay alive :evil:
I just bought a book, Dialysis Without Fear, a guide for patients & their families. It really explains a lot to me
I take a deep breath & am thankful for every day we have together now. Anyway, he seems so relaxed & happy now, can´t believe he was so sick & miserable for so long before .........
Allie


Allie the Britmum, "äiti" to 3 boys, 10,9 and 7, & little princess, 4.

Re: dialysís in Finland

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Pursuivant
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Re: dialysís in Finland

Post by Pursuivant » Fri Jun 05, 2009 12:24 am

You should watch the movie "Unknown Soldier" theres two lines you find quite familiar...

"I am hungry bit its calories or colories, they present you a paper that has these calories and explain you cannot be hungry. can you eat these calories?"

"lieutenant told me to get new boots"
"come now take everything, a man comes in and wants new boots. you think as if we were in america, come on now take everything"
"I can understand a man who loves beautiful womens, but a man who loves in such manner rags and clothes thats a bit too far"
"By the pricking of my thumbs,
Something wicked this way comes."


oompah18
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Re: dialysís in Finland

Post by oompah18 » Sat Jun 06, 2009 12:25 am

Ahhh, now the other 3 have vesirokko, chickenpox, even the exclusively breastfed, 6 month old, life goes on........
Kotiapu came today & I begged for more than 3 hrs a week help, so they said I may be lucky & get 2 hrs 3x a week from next week...... anything. Hubby bought a wonderful book of recipes for dialysis patients (in Finnish of course), only 2 problems, 1. can we get all this nondairy substitute stuff in SIWA? 2. Have we enough money to buy it all anyway? Still, he plans to restart baking bread again from this weekend.
Have a good weekend everyone (please don´t mention the cricket :beamer: )
Allie the Britmum, "äiti" to 3 boys, 10,9 and 7, & little princess, 4.


EP
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Re: dialysís in Finland

Post by EP » Sat Jun 06, 2009 12:33 am

You really have it tough right now. My sympathies.

What do you mean by non-dairy? If it just means lactose free they certainly must have it, so many Finns are lactose intolerant. But if it means soymilk and other such stuff they might not have it in a small Siwa. But my guess is that they would order it if you ask for it. The small market next to me orders what people want/need if it is not something they carry normally. Just ask for the "myymälävastaava" or "kauppias" and tell him/her about your situation. I am certain you will get what you need.


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raamv
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Re: dialysís in Finland

Post by raamv » Sat Jun 06, 2009 12:38 am

Allie,
Hope that he dont need to have Dilaysis for the rest of his life..
Have you followed on the Kidney replacements ?
I know its hectic with daily living..But also concentrate on long term....
MAKE sure that the salary comes in..
and that 2 months that banks give is normal.....
When it comes time to renew your "korko" or "interest", you might want to only pay interest for a year or so..but find that paper that says when your interest will be changed/reviewed in Finnish and then ask them an "Interest only" loan..
cos it helps to deduct tax..and helps with more cash on hand..( As the interest is tac deductible and will reduce your Husband's tax %):.
Also, if they dont cover that transportation on KELA or otherwise, you can try to deduct off the misc. Health expenses for your taxes..
Just so that you remember..
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Amandine.K
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Re: dialysís in Finland

Post by Amandine.K » Sat Jun 06, 2009 1:55 am

Oh Allie you surely have it tough right now. :( Here's hoping that everything will work out for your family :)


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Cory
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Re: dialysís in Finland

Post by Cory » Sat Jun 06, 2009 10:24 am

Allie,

Oh gosh...

Where are you exactly? There may be some of us who are willing to help out a bit with shopping, kiddy minding, etc. It's summer and schedules are a bit more flexible.

I think that Kela would do a means test on your current income and it may be possible to have an account set up with a taxi company. There are many families/individuals in your situation who just can't pay the taxi from their pockets each time they must go for a treatment. I don't think I'd settle for the first reponse you got from Kela about them not covering the costs. Does your husband belong to the church? If so, a call should be made to the pappi in your parish. They have child-care workers, home-care helpers and often slush-funds to help out parish members. Church taxes are used for exactly these types of situations.
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oompah18
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Re: dialysís in Finland

Post by oompah18 » Wed Jun 24, 2009 12:50 am

Still here! Hubby getting into regular routine of CAPD dialysis at home, (http://www.renalpatients.co.uk/capd.htm if anyone is interested) 4 times in 24 hrs. he is going to get a machine to use at home, but not for another month or so. That would mean only doing dialysis once in 24 hrs, during the night. I hope I have all that right! His diet isn´t too bad, mainly NO dairy, salt, & food rich in phosphorous, but it is hard to avoid E numbers in many foods. We have recipe books in both Finnish & English, so we manage. Doctor seems pleased with his progress so far AND his blood pressure is also lowering, gradually.... I am totally exhausted, mainly as the baby had a very bad dose of vesirokko/chickenpox, & then another ear infection & now 2 teeth have appeared so she has been a little grumpy & not sleeping well, day or night. But the 3 boys are doing great now that their dad is a lot more active again. The official Kotiapu give me 4 hrs a week help, but that´s it, but it is something. I have almost given up on housework, but am spending as much time outside as possible this summer, which helps me relax, keeps me fit & is much morefun anyway! Hubby just got the letter from Kela today saýing he will receive 200eur extra a month from July, which is good news. so life goes on :)
Allie the Britmum, "äiti" to 3 boys, 10,9 and 7, & little princess, 4.


Rosamunda
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Re: dialysís in Finland

Post by Rosamunda » Wed Jun 24, 2009 1:13 am

Hi there!

Burning the midnight oil because I am working tomorrow and have prep to do. Last lesson before the summer and then some testing on Saturday.

Was in the UK a week ago. Didn't go to Reading though, we were staying in Lyme Regis, but my sister came down from Woodley. Swine Flu at her next-door-neighbour's son's school.

One of my kids had a severe milk protein allergy (for 15 years) so I have quite a few books on the subject. Some are in French but I have a recipe book in Finnish which I am more than willing to send to you and I probably have a couple in English too. They are good for ideas.... If you are interested then PM me your address and I'll post them to you.

I can probably help you identify some dairy-free products but not sure if SIWA stocks them. You need to be careful with things like sausages because they often contain milk proteins (whey powder etc) and it's not always obvious on the labels. Most industrial sorbets also contain milk (usually disguised as something else) but one or two are dairy free (usually the more expensive ones :( ). You should find soja products in SIWA, there is a good range of yoghurts, milk, cream etc now, which I continue to use even though S is no longer allergic to dairy. Go Green do soja cream which you can use in cooking (eg for making quiche, pasta carbonara etc) and then all the Alpro (?) products are OK and Sojasun. I have used soja milk to make pancakes no problem. For baking, I used the silver pack of Suunantai margarine which is dairy free. I have seen dairy-free cheese slices down here (Citymarket) but I would be really surprised if you can get them in SIWA.

We survived for 15 years completely milk free and honestly it was much much easier here than in France, UK or Hungary. My son looked much healthier when he was on the dairy-free diet. Since he started eating milk, cheese etc he has put on weight and his skin is terrible.


oompah18
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Re: dialysís in Finland

Post by oompah18 » Sat Jul 04, 2009 10:37 pm

Thank you for your support, sorry I haven´t been on here much, too tired! My husband seems very content right now with his peritoneal dialysis, 4 times in 24 hrs, at home, it takes about 40 mins each time, & he usually sits down & reads a book while he does it, after breakfast, lunch, dinner & just before midnight, & it doesn´t seem to be disrupting our life too much this summer. He went back to TAYS and they checked everything & said that all was well. His BP continues to improve too. Our friends agree he looks a lot better than a few months ago! His weight has stabilised & we are getting used to certain foods that he uses a lot more in his cooking (more garlic, spices & herbs instead of salt for instance). he loves cooking, which is a relief for me, as I have always hated it anyway :lol: . Our fridge is always stocked witrh kaurakerma, kauramaito, blue cheese (he can have this but not cheddar or edam apparently) & EPO (the drug banned for pro atheletes, but my hubby requires it!)
We now make our own bread, pastries etc, life goes on!..... KELA finally sent some money & will continue to do so monthly, for a while yet. he hopes to have a dialysis machine at home during August, so he can start to use it at night time only, and prepare to return to work in early September. he is a uni lecturer & usually has a light teaching timetable anyway, but we shall see how it all goes. It is great to see him playing footie & cycling again, with us, as a familyonce more. This turn of events has made me realise that I need to take my own health more seriously & so I have really cut back on the daily afternoon routine of coffee & pulla :D , but I am still nursing the little one about 8 times in 24 hrs, so i can eat quite a lot still & have now lost 16kg since baby´s birth last November - only another 5 or so kgs to go, till I hopefully get back to my pre-children weight (before having a family I was far more sporty though!). I have also increased my exercise, especially as I need to have a break from the kids more often than I used to do (rarely, it has to be said), so hubby can really enjoy looking after 4 busy kids while I go out for a bike ride. Yeh!
Thanks again everyone for your help & support. Enjoy the summer....
Allie the Britmum, "äiti" to 3 boys, 10,9 and 7, & little princess, 4.


EP
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Re: dialysís in Finland

Post by EP » Sat Jul 04, 2009 11:15 pm

afternoon routine of coffee & pulla


Check the calories, pulla is not fattening :) You don´t have to give that up. Just keep it to one.

Anyway, I am glad it looks better now.


EP
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Re: dialysís in Finland

Post by EP » Sat Jul 04, 2009 11:18 pm

And I might add that you have done an EXCELLENT job with your weight, and so fast. But don´t diet when you are breastfeeding.

Anyway, loosing that "baby weight" is not always easy. It took me two years to loose the massive 28 kilos that I had gained.


oompah18
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Re: dialysís in Finland

Post by oompah18 » Sat Jul 04, 2009 11:23 pm

I am not actually dieting, but just having less junk :D and more exercise. We used to have micro meals occasionally but now, because of hubby, never! Not even a pub pizza :lol: I still can down a packet of digestives with a pot of tea while watching some sport on TV, footie, athletics, anything! And now the berries are coming along nicely in the garden & surrounding forest, mmmmmm, Oh I forgot to mention the fact that the regular icecream van stops right outside our house every couple of weeks :D
Allie the Britmum, "äiti" to 3 boys, 10,9 and 7, & little princess, 4.


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onkko
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Re: dialysís in Finland

Post by onkko » Sat Jul 04, 2009 11:33 pm

EP wrote:
afternoon routine of coffee & pulla


Check the calories, pulla is not fattening :) You don´t have to give that up. Just keep it to one.

Anyway, I am glad it looks better now.
Depends what your pulla means. My pulla is

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Caesare weold Graecum, ond Caelic Finnum


EP
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Re: dialysís in Finland

Post by EP » Sat Jul 04, 2009 11:43 pm

Onkko, that is korvapuusti, not pulla. Same dough but more fat.
We used to have micro meals occasionally but now, because of hubby, never!
Well, that will put your weight down automatically. Few years back I gained ten kilos (after loosing that 28), and when I started to make everything from scratch, I lost it in a year. No preservatives that also preserve fat.


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