Thanks for the replies, makes me feel better to hear from others! haven´t been on here much lately. Hubby was doing really well, life was fine, he was back at work, till mid sept when he got a stomach infection. he felt fine, it was just he noticed his outgoing dialysis liquid was the wrong colour (sorry if you are squeamish!). He needs antibiotics imixed with his dialysis liquid, a procedure they can only do at hospital, so he just sits around surfing or doing reading research all day in hosp, while they mix the antibiotics for him 4 times in 24 hrs. in sept, when it happened, he was allowed home or to work for a few hrs each day, in between treatments, as he could cycle - good weather. Now, the infection returned mid Oct, as there is not a regular bus from the hospital to our village & nasty weather, he just stays put, or goes to work, which IS on a bus route from there! So he gets on with life but we don´t see him much! We can´t afford the 45eur each way taxi fare. So my friends occasionally pick him up & we get him home for a few hours! The doc thinks that he could have had enough antibiotics by the end of next week, so we shall see.
I am not grumbling, we DID manage a family holiday in Lapland for a whole week (the nearest medical centre delivered his medical supplies to the rental cottage.) And coming back on the train we had a family cabin, the one under the kids playarea, (20 euros extra, bargain) so he was able to do dialysis in private.
If I described our trip to Lapland (10 hrs sleeping in triple bunks on the night train, followed by 4 hrs of bus with vomiting kids both ways) that would be a whole new post in itself, but I will spare you the details
But one final thing, i have got to say that my kids have really grown up this summer & seem to understand slightly at least that when someone is sick, life has to change a little.
good night!
Allie the Britmum, "äiti" to 3 boys, 10,9 and 7, & little princess, 4.